Neelam Rahim | neelam@radioislam.co.za

3-minute read
16 February 2025 | 10:44 CAT

Bridging the epilepsy treatment gap: Millions in low-income regions lack access to proper care, highlighting the urgent need for awareness and intervention.

A staggering 80 to 90 percent of individuals with epilepsy worldwide do not receive the treatment they need. This alarming treatment gap, particularly in low-income regions such as Sub-Saharan Africa, has raised concerns among medical professionals and advocacy groups.

Speaking to Radio Islam International, Dr. Rajeshree Govender, a member of the Neurological Association of South Africa, highlighted the dire state of epilepsy treatment in poorer communities.

“Patients in these communities have less access to proper care, limited expertise, and insufficient medication. In addition, the stigma attached to epilepsy prevents many from seeking treatment,” she explained.

The World Health Organization estimates that 50 million people globally live with epilepsy, with up to 75 percent in Sub-Saharan Africa lacking access to medication and adequate medical care. The widespread misdiagnosis and neglect of epilepsy are rooted in misconceptions and social stigma, further exacerbating the problem.

One of the most significant barriers to epilepsy care is a general lack of awareness. “Many people believe that epilepsy does not affect children, yet it is quite common among them,” Dr. Govender noted. She stressed the importance of education and awareness campaigns to dispel myths and encourage treatment.

The stigma surrounding epilepsy often leads to marginalization, with affected individuals being cast out of society. “Even if a diagnosis is made, societal discrimination can prevent patients from seeking proper care,” she added.

The lack of consistent treatment can have devastating consequences. Dr. Govender warned of status epilepticus, a life-threatening condition where seizures persist for prolonged periods, causing severe brain damage and requiring intensive care.

“If left untreated, epilepsy increases the risk of trauma, falls, and other hazards, especially in everyday situations such as cooking or swimming,” she said.

Despite the challenges, epilepsy can be effectively managed. “Up to 80 percent of patients on proper medication can lead completely normal lives,” Dr. Govender assured. She cited examples of successful individuals with epilepsy, including former U.S. President Theodore Roosevelt and cricket legend Jonty Rhodes, whose conditions were well-controlled.

While most cases can be treated with medication, some patients require advanced interventions such as surgery or specialized diets.

Dr. Govender called for greater access to healthcare facilities, better public education, and urgent policy changes to bridge the epilepsy treatment gap. “Raising awareness is crucial in ensuring that more people receive the care they need to live full, healthy lives,” she concluded.

Listen to the full interview on The Daily Round Up with Annsia Essack and Dr Rajeshree Govender here.